We are just getting started! Our main focus right now is to get the blog going and generate some interest. So check out the story of our family, and read more about the research that is being done right now. Find out more about anencephaly and how you or your loved ones can participate and/or contribute to these causes. And please share this blog with everyone you know!
Our Family's Story
When I was four years old, my mom gave birth to a little girl, Katie, who had anencephaly. She was stillborn. This was the first our family had heard of this disease. My parents were broken-hearted, and I was greatly affected, even as a little girl. Twenty years later, our first son, Benjamin, was born with anencephaly. He lived for a precious 30 minutes. Three years (and one healthy baby) later, I gave birth to our daughter, Abigail, who was stillborn. We are now waiting to be chosen to adopt a baby (find us! http://www.beta.itsaboutlove.org/, Brad & Cara,) but hope someday to become pregnant again. We love our children, all of them, and know that we will be together again. It continues to be a difficult journey, but always one of faith, hope, and family. We pray that dedicated scientists and doctors will be able to better determine what causes, and what may prevent, this disease, so that our children's children can be born without the threat of this birth defect.
